am i alive? am i still breathing?

in october 2015, i dislocated my left kneecap for the first time in four years. ah, the four year stretch. it seems to be the longest time i can go without breaking myself/others/electronics.

my kneecaps have always been awful. my knees, hips, ankles, spine -- well, let's just say all my limbs have never been great. each time a kneecap dislocation happens, i'm in the most intense pain i've ever felt for what feels like an eternity (but is usually under a minute before it pops back into place) and then i can't walk for days. four years ago, i slipped in a puddle at work and my screams echoed through the entire kitchen for a week. i've dealt with this from about the age of 12. growing up in a small town where doctors never understood the phenomenon that is my body, i was consistently sent home and told to rest and ice. when i tell my specialists about this, they are dumbfounded.

so when it happened again in october after i had been in physiotherapy for 8 months and was feeling quite strong, my physiotherapist ordered an orthopedic surgeon referral. in december, i met the surgeon who briefly told me that i need to strengthen the muscles which surround the kneecap and keep it in place. surgery was not an option due to a high failure rate. a few days later, i began those strengthening exercises with my physiotherapist. a couple more days later and i manage to injure myself again, but have no idea what i did. all i remember feeling was a sharp pain in my right knee while walking on the treadmill at the gym and then i was unable to walk for the next week without copious amounts of pain in both my right knee and right hip. the kneecap did not dislocate. there was hardly even a sublaxation of the kneecap. something happened, and i was temporarily disabled.

after this had been happening for 3 weeks and i didn't feel like i was getting better, i checked myself into the hospital and got x-rays which returned normal and a referral to a sports medicine doctor. once i told my physiotherapist about what had happened, we began electroshock therapy and she told me to begin acupuncture. when i met with my naturopath, she provided some relief and told me to begin osteopathy. when i met my physician, she did some bloodwork to check that everything was normal and will conduct a "leg exam" upon next visit, whatever that means.

today, i met the sports medicine doctor and once again explained all of my troubles. similarly to each specialist, he rolled his eyes at the way i was never treated properly until recently. he prescribed anti-inflammatory pills to reduce tension in my muscles and kneecap braces for both of my knees. if in 6 weeks there is not much improvement, he will refer me back to another orthopedic surgeon for consultation. he believes that although the issue lies within the weak kneecap muscles and extremely tight outer muscle that runs down from the hip to knee, there could also be a ligament issue that has been overlooked.

yes, there are officially 7 specialists keeping me alive and helping me get better.

i miss the gym. i miss walking without pain. i miss walking everywhere. i miss friends. i miss doing things.

my only goal is to get better.

the year everything ended in november

you might recall about a year ago, i was in a really bad place. i wrote countless blog posts about how everything in my life, including, well, me living a life, turned to absolute shit very quickly.

it was a combination of falling ill for 6+ months and losing my job where i wasn't sure things could get any worse. but let this be a lesson to everyone: the minute you think nothing is going to get worse from where you are, you're wrong. so very wrong. when you're ill for 6+ months, you pick up other sicknesses on the way and lose any and all hope you ever had that you were going to get better at some point. you lose track of who you are, physically and mentally. i got lucky that the severity of my symptoms were limited and that it was diagnosed and treated correctly the first time without my body rejecting the antibiotics. i got lucky that i had a strong family and friends base to keep me going. but it became arduous to keep on explaining to anyone who asked what was wrong with me. i wanted to believe it was something more than what the doctors kept telling me. how did everyone else get over this easily? why was it only me that had these issues? why was i the only one who needed to be hospitalized several times with no end in sight?

"why me?" was a phrase i uttered too many times during the course of treatment. nurses and doctors continued to greet me with looks of disappointment.  

"i thought i told you the last time you were here that i didn't want to see you again" i wish i had an answer. "

you might just have to be on antibiotic treatment for the rest of your life" were words that chill me to the bone to this day.

and maybe it was the stress of my job. or maybe it was that dude i was with awhile back i knew nothing about. maybe it's diet. maybe it's environmental factors. whatever it was, i wouldn't wish what i went through on anyone. i'd be a very happy girl if i never had to set foot in a doctor's office or hospital again.

a year ago, the life i had was taken from me abruptly and i was now bound to a life of "sorry, i can't hang out, i'm in the hospital". i'll always remember november 2013 of the worst month of my life up until that point.

but by january 2014, things began to change yet again. symptoms persisted and i knew i had to be strong. i was hired on at a job which i love, despite me not being able to make rent. i pressed on to events i wanted to go to and simpsons trivia nights that let us win first place a number of times. in july, i met a great dude who wasn't from the internet. yes, a real dude. and he's showing me what a real relationship is supposed to be like. it's amazing and only continues to get better as time goes on.

so, maybe things have to reach an all time low at some point before things ever start to get better. just try not to be deceived when what you think is the bottom ends up to be actually be further than you thought.

a hospital visit i won't soon forget

i was supposed to have that cystoscopy on thursday. i was terrified.

i remained cautiously optimistic in the fact that i was told they would give me a sedative or anaesthetic to help me relax. i was told it would be no more invasive than a pap smear. and well, that's fine, but i've never had one of those either. needless to say, i was pretty damn nervous to have my who-ha exposed and on display for the first time.

then, they told me i wasn't able to have a sedative or anaesthetic. they told me they don't do that. uhh, wait a minute. the secretary who booked my appointment said i could have drugs if i wanted them. and now you're telling me i can't? okay. well. uhm. let's give it a shot then. the nurse told me i wouldn't be able to feel much and it would be "just a pinch" - i'm a little relieved until she starts prepping me.

HELLO LADY?! THAT IS NOT A PINCH. THAT FEELS LIKE YOU'RE RIPPING APART MY FUCKING VAGINA DEAR GOD STOP.  i was crying and yelling and screaming. and all they had done was put some freezing gel on me.

yeah, so, that didn't go well. they didn't even try to go through with the procedure. and that's for the best. after i had regained my composure a bit, i talked to the urologist who ordered me some anaesthetic for next time and set up another appointment for next wednesday.

to get this anaesthetic, i had to go see a doctor at the walk-in clinic and get him to examine me, make sure i'm healthy, and sign off on the form to knock me out. guess who the doctor is? the one i fucking can't stand. the one who put me on the antibiotic that gave me c diff. the one that belittles me every chance he gets.

i calmly and politely discussed with him why i'm getting the cystoscopy and the instructions i was given to tell the doctor to ensure all the paperwork goes through. he then passively-aggressively mentions that i need to stop telling him how to do his job. WHAT THE FUCK, MAN?! this is MY body. this is what the UROLOGIST PERFORMING THE PROCEDURE WANTS AND IT'S DIFFERENT THAN THE NORMAL FORMS YOU HAVE TO FILL OUT, ASSHOLE.

he quickly runs through my physical, asking me when was the last time i had a physical done. i don't remember. he laughs. he then asks if my weight and height on the form are accurate, even though i had just estimated. again, he laughs inappropriately and i ask if i could weigh myself. without mentioning that he's finished examining me, he goes to leave the room. i ask if i'm supposed to bring all of my stuff and if we're done. he says "yes, we're done here" - DUDE. TELL ME THAT THEN. DON'T WANDER OFF IN A HUFF. YOU'RE A FUCKING DOCTOR. COMMUNICATE WITH ME.

i want to mention that when i saw this doctor days before i was hospitalized the second time and when he had prescribed me the second antibiotic, he asked me if i had sex in the last few months. i told him no, because i haven't. and that's the story i've been telling every doctor i had met over the past couple months. why would i lie? well, for some reason, this doctor seemed convinced i was lying to him and again, laughed at me, almost implying that i was a whore.

a nurse weighs me and i weigh in at 118 pounds. the doctor then tells me that i was "close" as i had written down 120 on the form. he either thought i was fatter than 120 or skinnier than 120... and it's probably the fatter one, knowing this guy. even the secretary at the urologist's office looked at me, as i was completely bundled up for the cold weather and said, "you look like you're about 110 and much taller than 5'6" 

i just want to get this test over with finally so they can tell me why i keep getting these recurring infections for no reason. wednesday needs to get here faster.

unemployed & more health issues

a lot can change in 2 weeks.

i finished the second round of antibiotics on sunday november 3. on the saturday, i went to the clinic for a follow up. i told the doctor i was feeling better and he told me to continue what i'm doing and come in a week later to do another urine sample.

i was feeling better for about two days. on wednesday, i woke up with the dull back ache and a bit of a tummy ache. well, that's not good. i went to the clinic on my lunch break and did another urine test. the doctor, once again, said i'm fighting something and put me back on the same antibiotics i just had for round 2, but for longer - 10 days this time. i went back to work and finished out the day.

i went to work thursday morning and settled in for another day. about twenty minutes into starting my work, my boss comes over and asks to talk to me. he brings me into one of the conference rooms with the HR lady. i figured they were just going to go over my benefits package again, which i was to receive the following week, on november 12, as my 3 month probationary term ended.

instead, my boss tells me that he's terminating me as part of my 3 months and that it was "a business decision" - effective immediately.

uh. what?!

so, i'm shocked. i don't even know what to say. my boss leaves and the HR lady tells me that i get paid until the end of the week and a bunch of other stuff i tuned out. i ask if this had anything to do with the fact that i have been very ill the past couple of months. she tells me it isn't. she then says it "just wasn't the right fit" and continues to tell me more things.

uh. i bring up the fact that about a month ago, i had a mini performance evaluation in which i was told everything was going great and they were extremely happy with me. the HR lady tells me she will try to look into this further for answers.

i've taken 3 sick days in the time i've been there. 3 completely legitimate sick days - 1 of which i was in the hospital before, 1 of which i was in the hospital after. however, my illness never once affected my work. ever. in fact, before heading to the hospital the second time, i came home and finished up part of the work that needed to be sent out that evening, but the servers were not working too well all day.

so, i was laid off for no reason. pretty much a "you'll reach your 3 months in 4 days but since you haven't, suck it" and now i'm back on the job hunt.

following this, i came home to niagara thursday afternoon. i had managed to get an appointment to see my family doctor friday. friday morning, i began to experience some light side effects from the antibiotics. i talked to my doctor who did bloodwork and another urine test. by friday night,  i was dying with these side effects and took some other medicine to help counteract it.

it seemed to work, as saturday i was only experiencing very minimal side effects. but, on sunday, i was back to being even worse. by 3pm, i was nauseous, dizzy, and having trouble breathing. yes, folks, this was hospital visit #3. in niagara this time. the hospital set me up with hydration IVs, took samples, and bloodwork. 4 hours later, a doctor was telling me to get off the antibiotics, that it looked like the UTI was clearing, and giving me a referral to a urologist.

i can only hope i'll see this specialist sooner rather than later, and that pain doesn't start to come back as i'm not on the antibiotics.

my only priority is to get better before i start my job search again.
but, should you see anything out there where i meet the qualifications, don't hesitate to get in touch.

repeat offender (my second toronto hospital visit)

remember that kidney infection from last month?

yep, so do i.

after i finished those antibiotics, i probably felt okay for about a week. and then i started noticing that i'd get sharp pains or cramps for like, a second, and then they'd go away. a few more weeks later, i was noticing that i was peeing more frequently, too. and it seemed as though i was falling into the symptoms i had last time.

this past saturday, i noticed that i was peeing an insane amount for only having a tea and a glass of juice in the morning. i decided that if it happened again on sunday, i'd go to the doctor. it didn't. what did happen on sunday was more sharp pains - consistent throughout the day and evening - that last for a second and go away. well, that's not normal.

my own room! fancy!

so, monday morning, i went to the doctor and did a urine sample, which came back positive for something and i had an abnormal white cell count. i was definitely fighting something. he gave me a prescription for an antibiotic and told me to wait until the results, unless the symptoms got worse. monday evening, i went pee and my entire body decided to hurt pretty bad and continue to hurt all throughout the night. barely sleeping, i woke up the next morning and had a sick day. i got the prescription filled and started to feel a bit better after taking them.

wednesday morning, i took a pill and the pain and discomfort did not go away. i went into work, despite feeling ill. i called the clinic and asked if my results were back and they told me to come in again. i went to the doctor after work, but the culture sample the doctor wanted to see wasn't back yet. but, he said i had a high fever and when he touched my tummy, everything seemed very sore. so, he wrote me a note to be admitted to the emergency room at the hospital.. again.

big guns: IV antibiotics

wonderful! wednesday evening, around 7:30pm, i checked myself in. by 10:30pm, two doctors examined me and tried to figure out my problem. at about midnight, they came back and told me that they're going to order an ultrasound, do bloodwork, and put me on IV antibiotics. but that i'd get home.. "eventually". with this referral from the clinic, i had my own room and it was kind of quiet. i was in and out of sleep for most of the time. the IV antibiotics made me feel less pain and discomfort. at 3am, i saw another doctor who told me to keep taking the antibiotics i got from the clinic and to go home to rest. they scheduled me for an ultrasound again, this time at 2pm.

i got home around 4am and went to sleep. i awoke and felt better with only minimal pain. i went back for the ultrasound at 2pm, waited for results, only to find the exact same thing as the last ultrasound: nothing. zilch. everything's healthy and functional.

so, it's either another UTI/kidney infection and i have seriously bad luck (it's unusual since i haven't been with anyone in months & never had a UTI before this) or that the one from september just didn't go away completely.

uh. here's hoping the second round of antibiotics kicks it in the butt!

my first toronto hospital experience

it's been a rough few days.

work had been so hectic last week. on friday, i wasn't sure what to do for lunch, so i went to a food court and picked up some chinese food to eat at my desk through lunch. it just so happened that HBC was promoting "free lunch fridays" and bought me my food. that was swell of them. i ate most of it pretty fast.

a few hours later, i was having intense stomach pain. oh good. the chinese food and my tummy are battling it out. i was not impressed. i left work early and came home to the next 4-5 hours of being seriously nauseous. i had food poisoning earlier in february, and that was not fun. plus, i had one other day in march i think, where i was so hungover all day & i didn't even drink that much.. but must have been the mix of wine & beer.

anyway, saturday, i still felt like crap. not overly nauseous but crappy enough. by sunday, i was starting to feel a little better but still had some minimal stomach pain. sunday night, the pain was so severe that i couldn't sleep and could barely move. yep, it was time to go to the hospital. at 2am, i left my place and hailed a taxi who took me so st. mike's. i was registered and waiting by 2:30am. by 3am, i was in a hospital bed and things were moving relatively quickly. they took some bloodwork, a urine sample, and i had a variety of doctors and nurses come by to check me out and see how i'm doing. they gave me some tylenol 3's for the pain and my in-and-out fever.

sometime after 5, the majority of the tests had come back and were all negative so they decided to keep me overnight for an ultrasound in the morning. i tried to get some rest as they stapled the guy's skull who was in the room next to me. that's something i could've done without hearing. at 6:30am. they moved me to a new room and a comfier bed where i was supposed to sleep because it was quieter, except it wasn't. at 8am, i was being prepped by a nurse for my ultrasound, and shortly after 9am, i had my first (and hopefully last) ultrasound.

fancy new IVs

i'll admit, i was really scared at this point. i was in a lot of pain, high on tylenol 3's, cold, anxious, nervous, nauseated, and not only was it my first time in a toronto hospital, but it was my first time in any hospital alone. prior to this was my case of appendicitis in 2008.. and man, have we come a long way in technological medical advances since then! for instance, the fancy new IVs? yeah, in 2008, i had to be hooked up to one of those wheely carts. now i could walk freely around!

by 10am, i was back in my hospital bed waiting patiently for my results. a new nurse came by and started talking to me. she told me i looked okay and that sometimes, it's nothing. i think she knew how scared and nervous i was. she really helped ease my fear. i was also sleepless at this point, so i'm sure that didn't help.

around 11am, a new doctor came to see me and told me that everything on the ultrasound was normal, healthy, & functional. but that my urine sample was positive for a bladder infection/kidney infection, so he'd put me on antibiotics for 10 days. i'm relieved.

what i had was something treatable! they gave me a pill, some water & juice, a cheese sandwich to eat, and my prescription, but didn't tell me i could leave. before i had even finished my sandwich, an orderly had come by to change my bed. uh, i guess i can leave then? i asked around to make sure.. and i did. maybe you should be clearer in your communication to me, rather than just handing me some stuff and leaving, without saying anything.

i noticed right away that the pill had taken the stomach pain away. i felt better for most of the day and took another pill before bed. on tuesday morning, i woke up and felt.. okay. not great. i took a pill and went about my getting ready for work routine. but when i got to work, i felt like absolute shit. i lasted 2 hours and came home to my back being super sore. i tried a couple of tylenol, but that didn't help and made me feel nauseous. i was in and out of fever & chills all afternoon. sometime after 6pm, i fell asleep and woke up after 8 feeling much better and less nauseous. i took another pill and went to bed, but didn't sleep that great.

instead of bothering to go to work today, when i woke up, i still felt like crap. i took a pill and felt better. i've been able to eat today and somehow managed to do laundry and clean the kitchen. but now i'm beat and feel a fever. it could also just be this heat. y'know, 43 degrees in september. it figures i'd be sick on the hottest days of the year.

i'm alive and stuff. for those of you who were with me through this entire wild ride, thanks! you definitely made my toronto hospital visit a better experience.