(dis)abled

for whatever reason since i moved to toronto, i've been dealing with a seemingly never-ending list of ailments. the latest being the stupidity of my knees/legs not working properly. and let me tell you, toronto is hardly accessible for the functional pedestrian, let alone those who aren't quite able-bodied.

my knees got exceptionally bad the past couple weeks and i've been back on meds the last couple days with positive improvements. like the majority of toronto pedestrians, i spend a lot of my time commuting on the ttc during rush hour. i, like everyone else, still have to get to work, whether my knees work or not. i can't afford constant taxis (not an uber because windows phone problems), i can't always walk a long distance (or short distances some days) and i definitely can't bike.

on one particularly rough knee day, it's rush hour and i'm trying to get home. a couple of king streetcars pass by me, too packed for me to even begin to think about getting on. a third one comes along and although i've been standing around the longest, everyone rushes the streetcar before it stops. it looks like there might be some room and i make a move. i make it onto the streetcar and move about an inch from the white line and can barely stand on my own two feet. i have a very noticeable limp. i look around frantically to see if someone might be able to give up their seat for me. in the blue accessible seats is an older lady and two younger looking people. as i continue looking around and trying to make eye contact with anyone at all sitting down, i feel a small tap on my back and a quiet voice: "sweetie, do you need a seat?".

it's the older lady. the only one who has noticed me get on the streetcar and require a seat. now, the last thing i want to do is move this older lady from her seat because i need one. i also do not feel comfortable asking someone for a seat because they might have some sort of invisible, underlying disability. or maybe they've been on their feet for 8+ hours a day and the only time they got to sit down was their commute home. i can only hope that someone who is a bit more able-bodied than me at the time will be nice enough to get up and let me have their seat.

i smiled at the old lady, nodded my head, and said "yeah, i do. is that okay?". the second i said something, the two younger people got up from the seats and moved so i could sit down. i was grateful, but the entire situation could have been avoided if everyone paid attention to the people getting on the streetcar.

a similar encounter happened while i was with another friend during rush hour on the subway. a train rolls into the station as the two of us are on the escalator down. as we're in no real rush and i can't quite move that fast, we get off the escalator and take a few steps toward the train when the doors ding dang dong. a few more steps and we would have been on the train with no issues. instead, an older man barrels down the escalator at full speed, yells, and pushes right through us to get on the train, nearly knocking the two of us down in the process. the doors close and the train leaves while we try to gather ourselves back up and realize that an older man just pushed two young girls out of the way to get on a train during rush hour. i was dumbfounded. 30 seconds later, another train rolled into the station and we were on our way again.

a slight push in the wrong direction, a twist of my own body, or my foot touching the crack of a sidewalk the wrong way can cause me a lot of distress and a possible dislocation/sublaxation of my knees. i wear knee braces to minimize the risk of this happening, but there is always possibility. this is why my greatest fear is now people. i can only be so careful to avoid certain situations and crowds, but i still have to get around, get to work, get home, go to buy groceries, attempt a social life and try my best to continue living life to the best of my ability.

i think the biggest problem is that when you see my face, i look like a young and healthy girl. a young, normal girl with knees that don't work the way they should.

please be mindful of those around you and don't fucking barrel through people. i assure you, the last thing you want to do is hear me scream if my knees dislocate. i guarantee you will be hearing that scream until you die. just ask my coworkers in that kitchen during the summer of 2011.

am i alive? am i still breathing?

in october 2015, i dislocated my left kneecap for the first time in four years. ah, the four year stretch. it seems to be the longest time i can go without breaking myself/others/electronics.

my kneecaps have always been awful. my knees, hips, ankles, spine -- well, let's just say all my limbs have never been great. each time a kneecap dislocation happens, i'm in the most intense pain i've ever felt for what feels like an eternity (but is usually under a minute before it pops back into place) and then i can't walk for days. four years ago, i slipped in a puddle at work and my screams echoed through the entire kitchen for a week. i've dealt with this from about the age of 12. growing up in a small town where doctors never understood the phenomenon that is my body, i was consistently sent home and told to rest and ice. when i tell my specialists about this, they are dumbfounded.

so when it happened again in october after i had been in physiotherapy for 8 months and was feeling quite strong, my physiotherapist ordered an orthopedic surgeon referral. in december, i met the surgeon who briefly told me that i need to strengthen the muscles which surround the kneecap and keep it in place. surgery was not an option due to a high failure rate. a few days later, i began those strengthening exercises with my physiotherapist. a couple more days later and i manage to injure myself again, but have no idea what i did. all i remember feeling was a sharp pain in my right knee while walking on the treadmill at the gym and then i was unable to walk for the next week without copious amounts of pain in both my right knee and right hip. the kneecap did not dislocate. there was hardly even a sublaxation of the kneecap. something happened, and i was temporarily disabled.

after this had been happening for 3 weeks and i didn't feel like i was getting better, i checked myself into the hospital and got x-rays which returned normal and a referral to a sports medicine doctor. once i told my physiotherapist about what had happened, we began electroshock therapy and she told me to begin acupuncture. when i met with my naturopath, she provided some relief and told me to begin osteopathy. when i met my physician, she did some bloodwork to check that everything was normal and will conduct a "leg exam" upon next visit, whatever that means.

today, i met the sports medicine doctor and once again explained all of my troubles. similarly to each specialist, he rolled his eyes at the way i was never treated properly until recently. he prescribed anti-inflammatory pills to reduce tension in my muscles and kneecap braces for both of my knees. if in 6 weeks there is not much improvement, he will refer me back to another orthopedic surgeon for consultation. he believes that although the issue lies within the weak kneecap muscles and extremely tight outer muscle that runs down from the hip to knee, there could also be a ligament issue that has been overlooked.

yes, there are officially 7 specialists keeping me alive and helping me get better.

i miss the gym. i miss walking without pain. i miss walking everywhere. i miss friends. i miss doing things.

my only goal is to get better.